Monday, June 22, 2015

Photos: Girl with rare syndrome which makes her joints dislocate several times a day

Teenager Emily James suffers from an extreme form of Ehlers-Danlos Syndrome which means her joints are loose and prone to coming out of their sockets.
The 17-year-old's jaw dislocates so often that she regularly has to have it wired shut for months on end and must be fed through a tube straight into her stomach.

Miss James routinely has to sleep with her arms in casts and slings and use splints on her legs to stop them dislocating in the night.
Daily Mail reports that at one point, she had major surgery to rewire her jaw so it wouldn't dislocate any more, but it came loose as surgeons were taking off her oxygen masks after the operation.
The illness leaves Miss James in unimaginable pain, but sadly there is no cure.
Doctors have been left baffled by the condition and are considering having a full body cast made for her to sleep in, to hold her together.
Miss James' mother Karen, from Salford, Greater Manchester, said: 'I hate to say it but when she comes apart like this she looks like she has been squashed.
'I am constantly putting all her joints back in place myself, however they are all such a mess now and so distorted that I can't see where they are supposed to go and I have to do it by Emily saying when they are right.
Can I hear someone say 'Lord I thank you for good health???'

2 comments :

  1. ha dis is horrible, wat on earth could be d cause?

    ReplyDelete